Ketogenic Diet – Day Two

Today my poor boy woke up not really wanting to drink or eat anything. He was served a keto eggnog again but refused it. They tried a different approach with a combo of keto cal and coconut milk with a very small serving of plain yogurt – coconut milk and yogurt being familiar foods that he enjoys. He refused it all.

Lunch time came. Scrambled eggs with cream and butter, served with sides of bacon and applesauce. He was so hungry at this point he could not refuse. He loved it and he ate every drop! He seemed to perk up momentarily, but became extremely lethargic as the day progressed. Blood tests revealed acidosis and borderline glucose level prior to eating. Food helped with glucose level, however his CO2 level was only 12 when it should have been 21. The only form of medication the the hospital had was liquid. That was a fiasco- first of all, liquid medicine is not ketogenic. Secondly, he hates liquid medicine. Spitting and refusing the meds, eventually the nurse and I had to hold him down. Throughout the day he continued to experience complete lethargy. He took a nap today – I am sure his sleepiness was a mix of the lethargy caused by acidosis, and being exhausted from the trauma of being held down and forced to take medication against his will.

I have requested that the hospital have the tablet form for his next dose. The nurse says they are trying to order it. He takes Topamax in pill form on his food, and I know I could get him to take the other pills this way too, both avoiding the trauma and extra carbs from the liquid.

Surprisingly his ketones were only at 40 earlier today…I thought they may be a little higher.

Tonight he was served his first oopsie roll with a nut butter mixture made from macadamia nuts and peanut butter together with sugar free jelly. He loved it and ate it all!

Around 8pm his final meal was served, which was a very small portion of scrambled eggs with cream and butter, along with bacon and apple sauce – half as much as earlier.

All day we hoped and prayed that he would begin to bounce back from this acidosis. I asked doctor if this may be increased because of Topamax. I have read several articles about Topamax and acid levels in the blood. His Doctor is still not willing to look at any reduction of medications…yet.

By evening his ketones were above 80, and his personality was beginning to shine through.

Praying for more breakthrough!

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This is the small evening meal with bacon eggs and applesauce….and the liquid around the eggs is butter that must be scraped off with a spatula and eaten.

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About jaw123456

I am a forty-something year old woman with a thousand interests. I am married to an incredible man who holds my heart. Living wholesome lives and training our children to lead lives that are worthy of the calling that God has for them is our hearts desire. Some of my interests include faith, family, adoption, homeschooling, whole and wholesome foods, cooking, sewing and living simply.
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3 Responses to Ketogenic Diet – Day Two

  1. Tana says:

    I was wondering if it is the meds that are holding him back? I know when we changed our diet for Bare to get off his blood pressure meds the Dr had to really watch because as he went to vegan he began to feel bad within a few days untll the Dr began to decrease his meds until he was completely off..just from what he was eating. Again I don’t know how it all works with his meds but was just wondering? What do you think?

  2. Christy says:

    Jessica, I am so glad to hear that DeShawn is doing better. As I was reading through your blog I realized that Ryland takes the same medication, though for very different reasons. I hope that your family continues to heal and that you will be able to lower, or even eliminate, DeShawn’s medication. That has always been one of our prayers for our son. -Christy

    • jaw123456 says:

      Hi Christy! Great to hear from you! Funny thing is that just yesterday the kids were asking about Ryland and expressing how they wish they could see you guys again. We plan to be on the mainland in May, but I highly doubt that we will be in Oregon. You could always come visit us next summer when the kids are out of school.

      Yes, DeSean continues to improve daily….and the medication…well, as I research more and more, I am finding too many families who have experienced dangerous side effects from this medication…many behavioral problems, and the medication even causing seizures. Unfortunately the is not much research especially double Lind studies about the possible problems associated with combining multiple medications for children. Interestingly, DeSean’s behaviors are greatly improved on this diet, his attention span is increasing and it’s only been a week! They say it takes about a month to finesse the details of the diet. I am so hopeful…

      Please tell your family hello from all of us. ❤

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